Table 3 Patients’ satisfaction using the Brompton’s single step questionnaire (SSQ)
From: Pectus patient information website has improved access to care and patient reported outcomes
Variable | Value | Did not visit website (n = 13) | Visited website (n = 19) | p-value |
|---|---|---|---|---|
Health in general after the operation | Much better now (5) | 3 (23.1 %) | 6 (31.6 %) | 0.095 |
Somewhat better (4) | 4 (30.8 %) | 11 (57.9 %) | ||
About the same (3) | 5 (38.5 %) | 2 (10.5 %) | ||
Somewhat worse (2) | 1 (7.7 %) | 0 | ||
Much worse now (1) | 0 | 0 | ||
Median | 3 | 4 | ||
Exercise capacity after the operation | Much better now (5) | 5 (38.5 % | 12 (63.2 %) | 0.249 |
Somewhat better (4) | 4 (30.8 %) | 2 (10.5 %) | ||
About the same (3) | 2 (15.4 %) | 4 (21.1 %) | ||
Somewhat worse (2) | 2 (15.4 %) | 1 (5.3 %) | ||
Much worse now (1) | 0 | 0 | ||
Median | 4 | 5 | ||
Extent the chest looks interfere with the pre-operative social activity | Extremely (5) | 7 (53.8 %) | 7 (36.8 %) | 0.505 |
Quite a bit (4) | 4 (30.8 %) | 9 (47.4 %) | ||
Moderate (3) | 0 | 2 (10.5 %) | ||
Slightly (2) | 2 (15.4 %) | 1 (5.3 %) | ||
Not at all (1) | 0 | 0 | ||
Median | 5 | 4 | ||
Extent the chest looks interfere with post-operative social activity | Not at all (5) | 7 (53.8 %) | 12 (63.2 %) | 0.6 |
Slightly (4) | 4 (30.8 %) | 5 (26.3 %) | ||
Moderately (3) | 1 (7.7 %) | 0 | ||
Quite a bit (2) | 0 | 1 (5.3 %) | ||
Extremely (1) | 1 (7.7 %) | 1 (5.3 %) | ||
Median | 5 | 5 | ||
Satisfaction with overall post-operative appearance | Extremely satisfied (5) | 3 (23.1 %) | 7 (36.8 %) | 0.628 |
Very satisfied (4) | 6 (46.2 %) | 6 (31.6 %) | ||
Satisfied (3) | 3 (23.1 %) | 5 (26.3 %) | ||
Dissatisfied (2) | 1 (7.7 %) | 1 (5.3 %) | ||
Very dissatisfied (1) | 0 | 0 | ||
Median | 4 | 4 | ||
Bothered by the surgical scars | Not at all (5) | 12 (92.3 %) | 14 (73.7 %) | 0.184 |
Very slightly (4) | 1 (7.7 %) | 4 (21.1 %) | ||
Slightly (3) | 0 | 1 (5.3 %) | ||
A little bit (2) | 0 | 0 | ||
A lot (1) | 0 | 0 | ||
Median | 5 | 5 | ||
Impact operation had on social life | Major Improvement (5) | 5 (38.5 %) | 5 (26.3 %) | 0.553 |
Improvement (4) | 6 (46.2 %) | 11 (57.9 %) | ||
No change (3) | 2 (15.4 %) | 2 (10.5 %) | ||
Worse now (2) | 0 | 1 (5.3 %) | ||
A lot worse now (1) | 0 | 0 | ||
Median | 4 | 4 | ||
Pre-operative self esteem | 1-10 | 3.7 (2.9–4.5) | 4.4 (3.5–5.2) | 0.280 |
Median | 3 | 4 | ||
Post-operative self esteem | 1–10 | 7.3 (5.9–8.7) | 7.8 ( 7–8.6) | 0.693 |
Median | 8 | 8 | ||
Pain during hospital stay | None (5) | 0 | 0 | 0.855 |
Very mild (4) | 2 (15.4 %) | 7 (36.8 %) | ||
Mild (3) | 0 | 1 (5.3 %) | ||
Moderate (2) | 9 (69.2 %) | 4 (21.1 %) | ||
Severe (1) | 2 (15.4 %) | 7 (36.8 %) | ||
Median | 2 | 2 | ||
Pain interfere with day to day activity now | Not at all (5) | 10 (76.9 %) | 9 (47.4 %) | 0.138 |
Very slightly (4) | 1 (7.7 %) | 5 (26.3 %) | ||
Slightly (3) | 2 (15.4 %) | 5 (26.3 %) | ||
A little bit (2) | 0 | 0 | ||
A lot (1) | 0 | 0 | ||
Median | 5 | 4 | ||
Pain now | No (5) | 7 (53.8 %) | 5 (26.3 %) | 0.253 |
Occasionally (4) | 4 (30.8 %) | 12 (63.2 %) | ||
Mild- no painkillers (3) | 2 (15.4 %) | 1 (5.3 %) | ||
Mild-painkillers (2) | 0 | 1 (5.3 %) | ||
A lot (1) | 0 | 0 | ||
Median | 5 | 4 | ||
Conscious about metallic bar | Not at all (5) | 1 (7.7 %) | 5 (26.3 %) | 0.154 |
Slightly (4) | 5 (38.5 %) | 8 (42.1 %) | ||
Moderately (3) | 3 (23.1 %) | 3 (15.8 %) | ||
Quite a bit (2) | 4 (30.8 %) | 2 (10.5 %) | ||
Extremely (1) | 0 | 1 (5.3 %) | ||
Median | 3 | 4 | ||
Overall satisfaction with the final result | Extremely satisfied (5) | 6 (7.7 %) | 8 (42.1 %) | 0.762 |
Very satisfied (4) | 3 (23.1 %) | 8 (42.1 %) | ||
Satisfied (3) | 3 (23.1 %) | 3 (15.8 %) | ||
Dissatisfied (2) | 0 | 0 | ||
Very dissatisfied (1) | 1 (7.7 %) | 0 | ||
Median | 4 | 4 | ||
Chest looks difference | Major Improvement (5) | 7 (53.8 %) | 8 (42.1 %) | 0.694 |
Improved (4) | 5 (38.5 %) | 11 (57.9 %) | ||
No change (3) | 1 (7.7 %) | 0 | ||
Worse now (2) | 0 | 0 | ||
A lot worse now (1) | 0 | 0 | ||
Median | 5 | 4 | ||
Going back, would you have the operation again? | Yes (10) | 10 (76.9 %) | 19 (100 %) | 0.031 |
Unsure (5) | 2 (15.4 %) | 0 | ||
No (0) | 1 (7.7 %) | 0 | ||
Median | 10 | 10 | ||
Overall obtainable score | 0–95 (95 % CI) | 60 (54–66) | 62 (59–66) | 0.65 |
Median | 62 | 62 |